Full Resource Name:
Sickle Cell Anemia Research Foundation / Alexandria
2625 3rd Street
Alexandria, LA 71309
A non-profit organization that provides a comprehensive program on Sickle Cell disease through education, screening, counseling and supportive services to individuals and families at risk of sickle cell disease.
"To advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease."
Provide leadership on a national level to create awareness of the negative impact of sickle cell disease on the health, economic, social and educational well-being of the individual and his or her family and to create awareness of the requirements for resolution.
Prepare and distribute substantive educational materials, written and visual, about the sickle cell disease problem for all relevant segments of our society.
Organize and/or participate in national and regional educational conferences.
Develop and promote the implementation of service programs that will be in the best interest of the affected population.
Develop positions and promote favorable resolution of issues and activities that could have an adverse effect on sickle cell programs or the affected population.
Assist in the organization and development of local chapters.
Provide ongoing technical assistance to members and other interested groups or organizations.
Encourage adequate support for research activities leading to improved treatment and eventual cure.
The Sickle Cell Anemia Research Foundation, Inc. provides a comprehensive program on sickle cell disease which includes education, testing, counseling, transportation, prescribed medicine and patient assistance.